Your Parent Is Leaving Rehab: Questions to Ask Before Discharge

By Arya Senior Care Services

Reviewed by Kshitij Bhat, RN, BSN, MBA, MSSCM

Your father is in rehab after a hospital stay. He is doing better. Therapy is working with him. Then someone tells you he may be going home Friday.

Friday sounds like good news.

It can also raise a lot of questions very quickly.

Can he get up the front steps? Can he get to the bathroom on his own? Is he still using a walker? Who is helping him shower? Did his medications change in the hospital? Is physical therapy continuing at home? Has anyone actually ordered the equipment he needs?

A discharge date tells you when someone may be leaving rehab.

It does not, by itself, tell you whether everyone understands what happens next.

The most useful questions are practical:

What can this person actually do now? What help will they need where they are going? Who is providing that help? And what needs to be in place before they arrive?

Families often use the word “rehab” for different types of post-hospital care. Much of the practical guidance here applies across rehabilitation settings, but some Medicare rules differ depending on the setting. When this article refers specifically to skilled nursing facility, or SNF, coverage and notices, that distinction matters.

If rehab has just started, you are not too early

Families sometimes wait until someone gives them a discharge date before they start thinking seriously about discharge.

By then, there may be a lot to figure out in a short period of time.

If your mother, spouse, grandparent, or another loved one has just arrived at rehab, start learning about the plan now.

Why was rehab recommended?

What are the main goals?

What could the person do before the hospitalization, and what can they do now?

What needs to improve for the expected next setting to work?

Is everyone working toward home? Assisted living? A family member’s home? Something else?

And are there obvious barriers already—stairs, difficult transfers, cognitive changes, nighttime needs, limited caregiver support, or a home that may no longer fit the person’s current abilities?

You may not know the discharge date yet. That is okay.

The point is to understand what everyone is working toward.

If your loved one is still in the hospital and rehab is only being discussed, ask why rehabilitation is being recommended and what the team expects the rehab stay to accomplish.

Choosing the right rehabilitation setting or facility involves another set of questions. Once the person enters rehab, though, the eventual transition out should already be part of the conversation.

First ask: What can they actually do today?

A person can make real progress in rehab and still need considerable help after discharge.

Ask about current function in specific terms.

Can the person:

  • get in and out of bed?
  • stand from a chair?
  • transfer on and off the toilet?
  • walk safely?
  • use the walker or other mobility device correctly?
  • manage stairs?
  • get dressed?
  • bathe or shower?
  • get to the bathroom in time?
  • eat independently?
  • remember and follow safety instructions?

Broad statements do not tell you enough.

“He’s doing much better.”

“She did well with therapy.”

“He’s walking now.”

All of those may be true.

But how far is he walking? With what device? Does someone need to walk next to him? Can he turn and sit safely? What happens when he gets tired?

And something families do not always think to ask: can he do at 7 p.m. what he demonstrated during therapy at 10 a.m.?

You are not challenging the rehabilitation team by asking these questions.

You are trying to understand what an ordinary day will look like after discharge.

When someone says “needs help,” ask what that means

This is where vague language can create problems.

You may hear terms such as:

  • supervision;
  • cueing;
  • standby assistance;
  • contact guard;
  • one-person assistance;
  • hands-on help.

You do not need to memorize rehabilitation terminology.

Ask what it means in real life.

If your grandmother “needs assistance” getting to the bathroom, does someone simply need to stay nearby?

Does she need reminders to use her walker?

Does another person have to physically help her stand?

Can one person safely provide that help?

Does she need assistance every time, or mostly when she is tired?

And who is expected to do this at home?

A family member being willing to help does not automatically mean that person can safely provide the help required.

A 78-year-old spouse may be completely committed to caring for her husband. That does not mean she can safely lift or steady him several times every day.

This is the time to get specific.

What is different from before the hospital stay?

Think about life before the illness, injury, or hospitalization that led to rehab.

What changed?

Maybe your mother walked independently before the hospital but now uses a walker.

Maybe your husband managed his own medications, but now there are several new prescriptions and a different schedule.

Maybe your grandfather was continent before hospitalization but currently needs help getting to the bathroom.

Maybe your aunt was cognitively sharp before she became ill and now needs more reminders or supervision.

Look across the whole picture:

  • mobility;
  • endurance;
  • cognition;
  • personal care;
  • toileting;
  • eating or swallowing;
  • medications;
  • oxygen or other equipment;
  • wounds or treatments;
  • supervision;
  • transportation;
  • caregiver involvement.

“Better than when they arrived at rehab” and “back to their previous level” are not the same thing.

The family needs to understand the difference.

For more on comparing current function with a person’s usual baseline, see our guide, “Something Has Changed With My Aging Parent. What Should I Look At First?”

What medications are they actually going home on?

Medication lists can change several times between the hospital, rehab, and home.

Before discharge, make sure there is one clear current list.

Ask:

  • Which medications should be taken after discharge?
  • Were any medications stopped?
  • Were new medications started?
  • Did any doses or schedules change?
  • Are there medications from before the hospital stay that should not be restarted?
  • Have new prescriptions been sent to the pharmacy?
  • How will medications needed immediately after discharge be obtained?
  • Who should be contacted if something on the list does not make sense?

Include over-the-counter medications and supplements in the conversation.

If you still have the person’s pre-hospital medication list, bring it with you.

Your job is not to decide which medications are medically appropriate.

Your job is to make sure the family knows which list is current and that discrepancies are clarified before everyone is standing in the kitchen at home wondering which bottle is correct.

What equipment needs to be waiting at home?

Do not wait until someone is in the driveway to discover that something essential is missing.

Depending on the person’s needs, equipment might include a:

  • walker;
  • wheelchair;
  • hospital bed;
  • bedside commode;
  • shower chair or other bathroom equipment;
  • oxygen equipment;
  • wound-care supplies;
  • other prescribed devices or supplies.

Ask three separate questions:

What is needed?
Who is responsible for ordering it?
When and where is it being delivered?

Those are not the same question.

For people with Original Medicare, Part B may cover certain medically necessary durable medical equipment prescribed for use in the home when Medicare’s coverage requirements are met.[1]

But the immediate discharge question is simpler.

If the person needs something to function safely at home, know whether it will actually be there when they need it.

What services are supposed to start after discharge?

“We set up home care” is not enough information.

Ask what was actually arranged.

Home health and therapy

Depending on the person’s needs and eligibility, post-discharge services may include:

  • skilled nursing;
  • physical therapy;
  • occupational therapy;
  • speech-language therapy;
  • other home-health services.

Find out:

  • Which agency received the referral?
  • Has the agency accepted the patient?
  • Which services were ordered?
  • When is the first visit expected?
  • What is the agency’s phone number?
  • What should the family do if nobody calls?

An order matters.

So does knowing whether someone is actually coming.

Personal-care help is a separate question

This distinction catches many families by surprise.

Home health does not automatically mean someone will stay in the home for several hours every day to help with bathing, dressing, toileting, meals, supervision, or companionship.

For people who meet Medicare’s home-health requirements, covered services can include part-time or intermittent skilled nursing, physical therapy, occupational therapy, speech-language pathology, and certain other services. Limited home-health-aide care may also be covered when the person is receiving qualifying skilled services.[2]

Medicare does not pay for 24-hour-a-day care at home. It also does not cover custodial or personal care such as bathing, dressing, or toileting when that is the only care a person needs.[2]

So if your loved one needs several hours of supervision or hands-on personal care each day, ask how that need will actually be met.

Family?

Privately hired home-care support?

Another community resource?

A different care setting?

A home-health referral may be one piece of the plan. It is not automatically the entire plan.

Does the home still work for what they can do now?

Picture the first few hours after the person gets home.

How do they get into the house?

Are there steps?

Can they manage them?

Where will they sleep?

Where is the bathroom?

Can a walker fit through the areas they need to use?

Can they get on and off the toilet?

Can they safely get into the shower?

If the bedroom is upstairs, can they realistically manage those stairs every day?

The house did not change while your loved one was in rehab.

The person’s abilities may have.

A home that worked perfectly well before hospitalization may need equipment, changes, more help, or a different short-term plan when the person returns.

Who is actually providing the help?

This may be the most important question in the discharge plan.

Suppose your father can return home if someone:

  • stays nearby when he walks;
  • helps him shower;
  • prepares meals;
  • manages transportation;
  • keeps track of medications;
  • takes him to follow-up appointments;
  • helps at night when he gets up to use the bathroom.

Who is doing that?

Not theoretically.

Actually.

Is his spouse available?

Can she physically provide the required help?

Does a daughter live ten minutes away—or two hours away?

Can family members cover mornings but not nights?

Is everyone assuming somebody else is going to be there?

Does he live alone?

Will paid help be needed?

A discharge plan can look reasonable on paper because it contains the words “family assistance.”

That phrase needs a real person behind it.

What follow-up is arranged—and what is still pending?

Before discharge, understand what comes next medically.

Ask:

  • Which clinicians need follow-up?
  • When should those visits happen?
  • Are the appointments already scheduled?
  • Does the primary-care clinician need to be seen?
  • Is follow-up needed with a surgeon, cardiologist, neurologist, orthopedist, or another specialist?
  • Are laboratory tests needed?
  • Are any test results still pending?
  • Are there wounds or treatments that require follow-up?
  • Who is responsible for reviewing pending results?
  • Who should the family call with questions after discharge?
  • What changes should prompt an earlier call or medical evaluation?

One question is especially useful:

Is anything still pending, and who owns the follow-up?

Do not assume that because the person has left one setting, every loose end automatically moved to the next one.

Ask what would make this discharge plan fail

This is not a formal clinical assessment.

It is a practical reality check.

Ask the rehabilitation team—and yourselves:

What is most likely to make this plan not work?

Maybe it is the three steps at the front door.

Maybe Dad cannot safely get to the bathroom at night.

Maybe Mom needs more supervision than her husband can provide.

Maybe nobody has confirmed delivery of the hospital bed.

Maybe the medication instructions are still unclear.

Maybe family can cover the daytime but nobody can stay overnight.

Maybe the person is physically stronger but still has cognitive changes that make being alone unsafe.

Every plan has a weak point.

It is much easier to find that weak point before discharge than at 11 p.m. on the first night home.

What if you do not think the plan is ready?

Start with the specific problem.

Instead of:

“I don’t think she’s ready to go home.”

Try:

“She still needs physical assistance every time she transfers, and her husband cannot provide that safely. What is the plan for that need after discharge?”

Or:

“The walker has been ordered, but nobody has confirmed that it will arrive before she gets home. Who is following up on that?”

Or:

“We were told home health was arranged, but we do not know which agency accepted the referral or when they are coming.”

A specific problem gives the team something specific to address.

Ask to speak with the appropriate people involved in rehabilitation and discharge planning. Depending on the setting, that may include nursing, therapy, social work, case management, the medical provider, or another member of the interdisciplinary team.

A brief note about Medicare coverage and appeal rights

Coverage questions sometimes become part of the discharge conversation, but coverage and discharge planning are not exactly the same issue.

If your loved one is receiving Medicare-covered care in a skilled nursing facility and Medicare-covered services are being ended, a fast-appeal process may apply. When the Notice of Medicare Non-Coverage process applies, the beneficiary generally receives a written Notice of Medicare Non-Coverage (NOMNC) before covered services end. The notice explains when coverage is expected to end and how to request an expedited review.[3]

The deadline can be short.

Follow the instructions and deadline on the person’s actual notice rather than waiting until discharge day.

A NOMNC concerns the ending of Medicare-covered services. It does not, by itself, answer every question about whether someone must physically leave the facility. Medicare coverage rules and nursing-facility transfer or discharge rules can overlap, but they are not the same set of rules.

Different rehabilitation settings can also have different Medicare notice and appeal processes.

Medicare rules involving skilled nursing eligibility, qualifying hospital stays, benefit periods, Medicare Advantage plans, cost-sharing, and appeal notices deserve more explanation than we can reasonably cover here. For an individual coverage question, use the person’s actual notice and health-plan information. Medicare and the State Health Insurance Assistance Program, or SHIP, can also provide individualized benefits information.

For this discharge, stay focused on the immediate question:

What needs to happen next, and is the plan ready?

Before discharge day, make sure you can answer these questions

You do not need to become an expert in rehabilitation or senior care.

But by discharge day, someone in the family should know:

  • What can the person do independently right now?
  • What requires supervision?
  • What requires hands-on assistance?
  • What has changed since before hospitalization?
  • What medications should be taken after discharge?
  • What medications changed?
  • What equipment is needed?
  • Has the equipment been ordered and delivery confirmed?
  • What home-health or therapy services are arranged?
  • Which agency is providing them?
  • When are those services expected to begin?
  • What personal-care or supervision needs remain?
  • Who is actually providing that help?
  • Does the home work for the person’s current mobility and needs?
  • What follow-up appointments are required?
  • What tests, results, or treatments are still pending?
  • Who is responsible for those items?
  • Who should the family call if something is not going as planned?
  • What is the part of this plan most likely to fail?

If several of those answers are still unclear, there is more discharge planning to do.

When another set of eyes on the transition can help

Hospital and rehabilitation transitions involve a lot of moving pieces.

The medical team may be focused on the person’s clinical condition. Therapy is looking at function. Nursing may be teaching medications or treatments. Social work or case management may be coordinating services and equipment.

Meanwhile, the family is trying to answer a different question:

What is daily life actually going to look like when this person leaves?

Sometimes what is missing is not another recommendation. It is a clear view of how all of the recommendations fit together.

Arya Senior Care Services provides Hospital & Rehab Transition Support to help families understand the plan, organize information, identify unresolved questions, consider the older adult’s current function and support needs, and navigate communication and follow-up across the transition.

Arya does not replace the hospital, rehabilitation facility, treating clinicians, home-health agency, or other providers involved in the person’s care. The role is to help the family make sense of the transition and prepare for what comes next.

Sources

  1. Medicare.gov. Durable Medical Equipment (DME) Coverage
  2. Medicare.gov. Home Health Services
  3. Medicare.gov. Filing an Appeal / Fast Appeals
  4. Agency for Healthcare Research and Quality. IDEAL Discharge Planning
  5. Centers for Medicare & Medicaid Services. Your Discharge Planning Checklist
  6. National Library of Medicine, MedlinePlus. Leaving the Hospital — Your Discharge Plan
  7. Centers for Medicare & Medicaid Services. Notice of Medicare Non-Coverage and Detailed Explanation of Non-Coverage
  8. Centers for Medicare & Medicaid Services. Long-Term Care Facility Requirements: Comprehensive Person-Centered Care Planning and Discharge Planning

Educational Disclaimer

Resources published by Arya Senior Care Services are provided for general educational purposes and are not a substitute for individualized medical, legal, financial, or other professional advice.

Discover more from Arya Senior Care Services

Subscribe now to keep reading and get access to the full archive.

Continue reading